Rising Voices Of Narcolepsy
Paula Shares Her Story for World Narcolepsy Day
Paula is sharing her story because she wants to help bring awareness to this invisible illness. For World Narcolepsy Day, Paula asks that you share her story to help her raise awareness. If you would like to contact Paula, she can be reached at @paulab1005 on Instagram. Happy World Narcolepsy Day! What's your story? #worldnarcolepsyday #narcolepsy #narcolepsycommunity
Paula's Story of Living with Narcolepsy
“In 1979, fresh out of high school living in Atlanta, I was ready to start my life,” says Paula. “Going to school full time, working part-time, and enjoying a full social life, I never felt there was anything wrong with sleeping every moment I could. It was even okay when my friends started teasing me for always falling asleep.” Paula didn't know she had a sleep disorder, read more to hear the whole story.
Navigating Living With Narcolepsy With Cataplexy
Sleep attacks, constant fatigue, and sudden loss of muscle control barely begin to describe the most challenging aspects of living with this sleep disorder. Read Fiona's story of navigating life with #narcolepsy with #cataplexy.
Grisel's Story Part II: Learning about Narcolepsy | Rising Voices of Narcolepsy Speaker Series
Grisel's troubles started in the classroom. Then one morning, when Grisel's mom tried to wake her, she couldn't move. Project Sleep's leadership RVN training program aims to raise awareness about narcolepsy while also empowering a new generation of patient advocates sharing their stories via writing and speaking. We brought some international speakers together to adapt their video stories into this video series, so that their stories can reach more people around the world.